Monday, January 19, 2015

Whirlwind week of highs and lows, wins and losses

So, where could I possibly start.

Having never been to a naturopath before, I took the advice of a friend and sought out a very well known one in my area. In the month I waited for my appointment, anyone I mentioned it to seemed to have heard of him and his silky skills. I got more and more excited as the appointment approached, which coincided with repeated trips back to my hopeless GP as we went through the process of blood tests and him delivering results in a monotone, emotionless way. I had to ask for just about every blood test, I was determined to find what had triggered my alopecia. I repeatedly asked him if the medication I'd been on for the last two years could be causing this and he repeatedly said I could stay on it for the rest of my life with no side effects. I believed him.

Within 3 minutes of me entering my naturopaths consulting rooms, with very little conversation between us, he told me that the medication was depleting all the calcium from my body. He also told me that my back issue was misdiagnosed. Yes I may have displaced disks, but the pain was coming from a twisted muscle that had displaced the disks. He untwisted it there and then. I went off the medication that very same day. I can sleep on my back for the first time in two years.

I'm taking natural supplements to restore my health. I've been told that I will have alopecia for life, although my naturopath says he will cure that too. Right now I feel like I am taking some steps to regain control of my life again, rather than being controlled by the medication.

Next step is to take control of the stress in my life. The work email is off my phone now, I've even turned off vibrate so no pesky alerts can disturb my sleep, even when the phone is on silent.

I'm drinking more green smoothies, eating less crap, have cut down on sugared refined foods and am slowly starting to crave healthier options.
My unexpected journey has begun.

Tuesday, January 6, 2015

New items added to the shop

It's been AGES since I've done a shop update on the blog, in fact ALL of my most recent posts have been about my health. Sorry about that - but with Facebook, twitter, pinterest, instagram and the blog, as well as two Etsy shops - I just couldn't handle splitting my blogs up into the different interest areas. Writing all of that makes me realise I could do with a little simplification in my life, especially considering the shop is meant to be a hobby lol.

So anyway, here are the latest random items to be added to the shop. I'm well over due to do a proper photo shoot with my gorgeous models and my racks of clothes, however, for now, this will have to keep you satiated.

First up is this Vintage Retro Australian 1960s Lady Sunbeam Portable Hairdryer

Rather amazing Retro Vintage Australian Lady Sunbeam Portable Hairdryer
Made in Australia by Sunbeam Corporation
The case is damaged at the hinge but the hairdryer is in great condition
Includes a couple of original curlers, hairpins and curler pins and original carry strap for multitasking!

This is great as a collectors piece but can also be used and a nail dryer too!
It weighs 5.5 kilos so unfortunately would cost a bomb for international buyers to ship, however please do convo me should you want to ship internationally!

$20 + $25 postage within Australia
WA buyers - pick up option available - just convo me before purchasing!


https://www.etsy.com/au/listing/217505099/vintage-retro-australian-1960s-lady


and here a pair of Vintage 1970's blue denim Men's shorts
A large sized pair of men’s vintage blue denim shorts
cotton
Made in Australia

Measurements:
Size medium
All measurements are taken lying flat unless provided on the garment label and should be measured against your own clothing for accuracy.

Waist size: 95 cm / 38"
$20 + postage within Australia
International postage options available

Here we have a gorgeous Vintage 1980's Cabbage Patch Kid Doll 
Great condition - she could do with some clothes!
WA buyers - pick up option available - just message me before purchasing!
$35 + postage within Australia

Lots more being added to the shop today - vintage purses and bags, an A Team jigsaw and Vintage lotto game and some vintage patterns will be added to the other shop VintageTwistPattern tomorrow with any luck.

Busy Busy Busy!

Thursday, January 1, 2015

I believe in signs

Do you believe in signs?
For well over a year now I've been seeing feathers in my path. Mainly at the park when I'm walking my beautiful Weimaraner dogs, but also in other places that are more random, like in the city on my path to work.

Anyway, so that's the feathers. Then, shortly after my diagnosis with AA, I was op shopping and found a stack of Barbie and Brats dolls. They were so cheap that I grabbed all the ones that didn't have missing limbs for my nieces and action man doll for my nephew for when they came to my place for xmas day. They weren't the hit that I thought they would be, however, I also picked up a doll that seemed poignant to find, for myself. She now sits on a shelf above my computer as a sort of mascot for me. I already own a long straight purple wig you see. Those of you following the blog in the past would know that if you've seen my Etsy shop. The purple wig has starred in some of the shots. Like this one of Devon my niece-in-law.

So imagine my suprise when I found the below doll, with removable purple hair. Woah! Talk about a sign from I dont know where but I got it!



So AA Mascot she has become and just to top it off, I shit you not, I was just on my way to get another round of blood tests, driving down the road, I see a blond wig in the middle of the road.


Wednesday, December 31, 2014

A New Year and some tough choices

I'm quitting sugar!
I figure if I say it out loud I have a chance at sticking to this decision!

I have long suspected that my gut can no longer process sugar and highly processed foods. I recently found a name for what I think I've been experiencing - Leaky gut Syndrome! It's this weird sickly feeling in your gut in the morning when you've had a few drinks or eaten foods high in sugar the night before.

I used to drink Jack Daniel's and coke zero. Started to feel sick the next morning. When I say sick, it wasn't from being hungover as such. I would only ever have around 3 large drinks every other Friday night. Then I swapped to mixing it with dry ginger ale. That worked for a while and then the same thing started to happen.

Then I noticed it happening after a night of sugary deserts or sweets.

I know this is going to be tricky for me. I know I may have moments of weakness. I will try my hardest because I feel like sugar may be toxic for me.

I have sugarless coffee, have done for many years now. It's chocolate that is going to be the killer. OMG I love chocolate.

My Alopecia spots have been really itchy the last few days. I got M to shave the underneath for me again as I obsess less over the difference in length at the back when there is relative even smoothness back there.

I've been rubbing my coconut oil and essential oil mix in every few days, which provides some relief.

So I've read a lot about the links between AA and sugar, AA and wheat & gluten.
I've pretty much eliminated gluten, bar the odd fruit mince pie in the last few days.

It's time to up the anti and see what sugar free means to me.

I'm in the middle of a few AA books and loving them all. I'll add them to the AA page for easy access.

One is about going forward Boldly Bald as a woman, in the same way men are accepted to do so. I braved the E Reader land for this one to give me something to read through my frequent bouts of insomnia of late. I also have another downloaded for after that one, by a young lady who grew a full head of hair back by changing her diet completely. I've already got her cookbook and have been enjoying her juices and smoothie recipes in the last few days.

Then there is one about acceptance accompanied by beautiful soothing images, all words and pictures created by the same lady who has had AA for 30 years.

And another presenting the cold hard facts of the disease and potential things in your body that may be 'out of whack' and strategies for correcting them. It came with a meditation CD that I will try tonight (just as long as I can get it onto my phone!!!)

Time to face the day!
Happy New Year to one and all
x

Tuesday, December 23, 2014

All I want for Xmas is......

Some can probably guess what the answer is.... Yes selfishly I only want my hair to stop falling out. I don't care if the spots don't grown back.

I've gone into disguise mode and have had my hair shortened in a blunt bob with the largest spots at the back and underneath shaved in a mod undercut.


I had this exact haircut when I hung out with mods and rude boys when I was 16.

So I had a few teary meltdowns this week. As my hair thins in general all over my head, I'm finding it everywhere. My clothes, pillow, bathroom, car and brushes are covered. The not knowing is excruciating. Not knowing if I will lose the lot or not.

I've quit gluten, reduced dairy but sugar is still well and truly in the picture. The more I try to deny the more I crave it. NYE resolution?

Insomnia has paid me a visit this morning as I write this it's 3:30am. It's windy outside and I can't turn my brain off. But as M will be getting up in a little over an hour, I'm going to give sleep another go.

Thursday, December 18, 2014

waaaaaaaaaaaaaaaaaa spots galore

I was so will-powered up at the work xmas party yesterday. I ignored the cheese platters and chocolate, strudel and cheesecake. I ignored the bread, bread sticks, dips and feta salad. There was still plenty of GF options and Dairy free things for me to eat and I was full to bursting.

Came home and bought the family pizza while I happily ate a mango and a peach.

Then as Im watching TV I discover several new spots, all at the back of my head. I've been doing (nearly) everything right so why is it getting worse instead of slowing?

Im still 3 weeks away from seeing a naturopath and 6 weeks until my dermatologist appointment. I figure ill have no bloomin hair left by that point!!!!!

Im going to enjoy some funky short hair cuts over summer while I can.
Heres one Im really liking:

Ahhhhhh I am trying to find the positives when all I wanna do is sook! Alopecia is beginning to take over my life :( 


Saturday, December 13, 2014

Diagnosis confirmed, time with friends and random snowmen

Yesterday, my blood tests confirmed I have the markers of an autoimmune disease. I have now had blood tests that are more sensitively pinpointing what that might be.

I also purchased some essential oils to mix with a coconut base, to use as a hair tonic/rub
You can find the recipe I used here:
http://www.pinterest.com/pin/384565255655634024/

and other recipes and Alopecia related pins on the board I created to collect what I find on pinterest here:
http://www.pinterest.com/vintagetwists/alopecia-areata/

I very much wanted to spend the day at home after getting the results. Then I started to feel hungry for spinach. Which evolved to Eggs Bennedict with smoked salmon instead of my beloved bacon. I went home from the doctors via the local supermarket and stocked up on ingredients, then via the fruit & veg shop for much fresher fruit and vegies (lots of coloured fruit and greens after watching my new heros ted talk about minding your mitochondria)

I made my man and myself a delicious brunch of GF bread, hollandaise sauce instead of butter (baby steps) smoked salmon, a pile of spinach and rocket greens topped with a poached egg for myself and 3 poached eggs for him. OMG yum.

This kept me going until mid afternoon when I munched on a cacao and hazelnut GF, Lactose free and sugar free fruit bar (Ive started keeping a few in my handbag so Im not tempted to by crappy food when Im out)

I also now have small bags of walnuts, dried cranberries and cacao nibs near my computer desk for munching on between meals.

I think the thing to note here is I am preparing ahead to avoid my known weak points in regards to diet. Replacing fast food and pre-packaged foods with healthy options I have conveniently prepared ahead of time for myself, is a way of avoiding bad choices when I'm short on time.

And just for fun, I messaged my friend out of the blue and asked her what her plans were for the afternoon. We ended up and a beauty salon doing nails and having a lovely time together laughing and regressing to our teenage years (we've known each other since I was 13)

and here is the end result!